Back when I started this blog in 2008, I called it Monomelic-Amyotrophy-Tastic! About a year ago, my diagnosis changed, so I changed the name to probable ALS definite hilarity. Well, it's due for another name change.
My probable ALS is pretty much a sure thing at this point. That's been the case for a while, I just can't think of a new name for my blog! Really, there was only one place for probable ALS to go -- and that is definite ALS. It's not like the doctors were going to say, "Our bad, turns out you just have a really bad hangnail".
Could you imagine that hangnail? Man, that would suck. And if you got lemon juice on it? Forget about it.
Chances are good, if you can call it good, that I have a variant called Brachial Diplasial ALS. That would explain why my arms grew weak for three years before my legs started getting in on the act.
I'm sure I'll figure out a way to keep being funny despite having a pretty gnarly disease. For example, check out this bit;
At some point the muscles in my face are going to start getting week, and then I'll begin slurring my speech. I'll eventually sound like I'm drunk. Which I figure is the perfect excuse to actually be drunk all the time. Who is going to know?!? I'm already stocking up on flasks, and the mini fridge for beer gets delivered to my office next week.
See? Funny stuff. Who said facing death couldn't be funny? As proof, check out how funny dying can be, and how absolutely hilarious death can be.
Anyway, I'll keep blogging my gimpy little ass off as long as I can. I know there are a lot of people out there with Monomelic Amyotrophy who read this blog and might be freaking out like, "holy crap what if I have ALS?!?!" Well, you probably don't. That is my expert opinion.
I didn't want to get all old and lame anyway. Tell 'em, Joey.
1 comment:
I've finally thought of a way to help. We'll get drunk together - except I'll get twice as drunk as you so your slurring will be unnoticeable!
Also, have you considered that if you slur your words sober that getting drunk may reverse the process? It's worth experimenting.
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